at 10 Oct 2017 09:40
Here the final information, which we did not get the drug Ivosidenib from Agios / USA, despite all efforts and disclaimer, etc., a childhood does not seem much value here.
However, our son MAURICE is doing relatively well through sugar renounce and an alternative treatment in London. Germany knows no treatment for Him.
Parents / Mothers and Fathers - Fight for your children as if it were the last day, fight for you. Doctors and companies will not do.
We will never give up.
Maik Wegner, Germany.